610 patients registered at Thalassemia Centre CMCH since its establishmentMarch 11, 2015
LARKANA: As many as 610 Thalassemia patients have so far been registered at Thalassemia Centre at Chandka Medical College Hospital here since its establishment.
These affected kids belong to five districts of Larkana division and other adjoining areas, and they are brought here weekly or as per the need by their parents for transfusion of blood to remain alive and to get medicines. Most of these children are very poor and cannot afford expenditure over procurement of blood from the private blood banks which is being sold openly at the cost of between Rs 2000 to 3500 by private blood banks which undertook at the very outset to supply blood free of charge to these patients but they are now doing roaring business.
Few of the poor parents told PPI that the blood bank owners usually ask them to provide blood in exchange of needed blood group and then they charge for blood packs and screening for which they are unknown whether screening is conducted or not and the required machinery is available with them or not for that purpose.
The Sindh government has recently released an amount of Rs 37.5 million for two Thalassemia Centres – one of Larkana and other of Umerkot, out of which Rs 25 million have been placed at the disposal of the Medical Superintendent, Chandka Medical College Hospital to procure required medicines for these affected kids. This amount has been sanctioned by way of re-appropriation from the lump-sum provision of Rs 250.0 million. Electrophoresis machine chemicals are very costly which may be supplied by Sindh Health Department on annual basis.
Dr (Capt) Bashir Ahmed Burdi, former incharge of the Centre, who has retired two months back told PPI that almost all the facilities are available in the Centre except blood for which, he said that, blood donation camps should be organized to collect blood for these poor ailing patients through donors.
He also said that services of a doctor and a pathologist along with lab technical staff, kits, ambulance is required and it will become very easy to collect blood to support the suffering kids. He said that these patients require RBCs while other products of the blood like plasma, platelets, white blood cells, clotting factors can be sold or given to other needy patients suffering from other diseases. Dr Burdi said that if district administration with coordination of CMCH authorities start this project, affected kids will be greatly benefitted. Dr Burdi further said that he is always available for this noble cause.
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