20,000 suffer from Thalassaemia in SindhMay 6, 2013
KARACHI: Over 80,000 people are suffering Thalassaemia disease in Pakistan and out of them 20,000 live in Sindh province. The family marriage system is the main cause of this widespread disease in Pakistan.
These views expressed by Assistant Professor Pathology Peoples Medical College Hospital Nawabshah Dr Anwar Akhund while addressing a seminar in connection of ‘World Thalassaemia Day’ held on Monday at local hotel.
The seminar was organized by Sindh Blood Transfusion Authority, Health Department Government of Sindh. The participants of seminar included officials of health department Sindh, medical professional, medical representatives, stakeholder of transfusion services centers of Sindh both from public and private sector, NGO sector, regular voluntary blood donors and Thalassaemia patients.
Dr Anwar Akhund said out of 20,000 Thalassaemia patients only 8000 are registered in Sindh, while 4000 registered in Karachi. He said there is no proper treatment of disease. He said prevention is necessary and for this it is vital to create awareness among masses.
Consultant Haematologist of Aga Khan University Hospital Karachi Dr. Bushra Moiz stressed for proper screening and test of couple before cousin marriage only way to save people from Thalassaemia disease. She added that Thalassaemia disease directly affects the heart and liver of the patient.
Project Director Hussaini Blood Bank Karachi Dr Sarfaraz Jaffrey urged the NGOs inform the government about spread of Thalassaemia and its causes. He said encouragement of patients those who are suffering from Thalassaemia is essential along with quality transfusion of blood.
Prof of Haematology Dow University of Health Science Akbar Agha said Thalassaemia disease is global issue and to eradicate this disease through proper awareness at every level is needed.
Chief Guest Additional Secretary Health Nadeem Sheikh said bill of Thalassaemia ordinance has been sent to governor Sindh for signature. He hoped this ordinance will be implemented in the province soon.